The app’s tools enable field teams to track the physical, social, academic and emotional progress of vulnerable children based on the Washington Group measurements and Measure Evaluation’s Child Status Index, which we have tailored for children with disabilities.
The app also contains 12 tailored counseling guides that our field staff and trained local leader child advocates use to support children with disabilities and their caregivers and refer them for care.
The app’s prioritization and emergency care feature also enables app users to provide immediate support to children who are showing signs of malnutrition, illness, abuse or life-threatening medical needs.
Hellen’s birth was difficult and was soon followed by high fevers and seizures. As she grew, her parents noticed that she was unable to speak, move easily, or sit on her own. Her mother took her to nine different traditional healers who believed that Hellen had been bewitched. Despite their treatments, Hellen did not improve.
Over time, Hellen’s family blamed her mother for causing her disability and refused to accept or support Hellen. Since the family lacked resources, Hellen was often denied meals and became emaciated. At his lowest point, Hellen’s father even expressed a wish for Hellen to die.
When Pastor Ndundi, a Kuhenza/Kupenda-trained disability advocate and Kuhenza/Kupenda staff learned of Hellen’s situation, they visited the family to provide counseling and nutritional support. Through their efforts, the family had a better understanding of Hellen’s disability and how to offer support.
Hellen’s mother stated,
“I learned that my child’s disability was not a result of witchcraft but … prolonged labor and my child’s sickness after giving birth…This knowledge has been an eye-opener to me and my family.”
Today, Kuhenza/Kupenda’s Child Case Management Mobile App allows local leaders and staff to continue to track her needs and provide follow-up support.
Her father stated,
“It is through Kuhenza/Kupenda that my child has been able to access medical interventions. Her nutritional needs are being met and the psychological wellbeing of the family has been taken care of. Thank you so much Kuhenza/Kupenda for giving us hope at a time when we were so desperate!
Last year, this app tripled the number of children our staff and leaders were able to support with counseling and care for abuse, therapy, education, stigma, and medical care needs.
To learn more about this project, check out the short video created by our Boston University partners and a video presentation by our Development Director.
COPYRIGHT LICENSE AGREEMENT
This Copyright License Agreement (the “Agreement”) is effective as of [date] (the “Effective Date”) by and between Kupenda for the Children and Kuhenza for the Children (“Licensor”) and [partner name] (“Licensee”) (each, a “Party” and collectively the, “Parties”).
WHEREAS the Parties have a mutual interest in the field of disability justice and advocacy who share materials, information, connections, and other resources in the furtherance of this mutual interest;
WHEREAS Licensor owns or has a right to license certain materials, including, but not limited to, documents, publications, videos, and electronic resources, related to its work in disability advocacy, including those materials described in Exhibit A (the “Licensed Materials”);
WHEREAS Licensee plans to use the Licensed Materials to update Licensee’s materials related to disability justice and advocacy (the “[partner name] Updates”); and
WHEREAS Licensor desires to grant Licensee a license to the Licensed Materials for use in conducting the [partner name] Updates.
NOW, THEREFORE, for good and valuable consideration, the receipt and sufficiency of which are hereby acknowledged, the parties agree as follows:
IN WITNESS WHEREOF the Parties have executed this Agreement on the date set forth below.
Kupenda for the Children Name: Cynthia Bauer Date: [date] [signature1] |
Kuhenza for the Children Name: Leonard Mbonani Date: [date] [signature2] |
[partner name] Name: [partner name] Date: [date] [signature] |
Exhibit A
Licensed Materials
Disability Law Guides
Other Disability Advocate Resources
Disability Training Workshop Pre- and Post-Assessments
Disability Advocate Weekly Activity Reports
Interview Guides
Coronavirus Guidance
Disability Guidebook
Child Case Management mobile app
“Kupenda” documentary
Pastor Training Materials
Traditional Healer Training Materials
Government Leader Training Materials
Parents and Caregivers Training Materials
Muslim Leaders’ Training Materials
Post-Disability Training Support Strategies Guide
Disability Advocate Training of Trainers
Parent Support Group Guide
Abuse Prevention Guides (for children and caregivers)
Interfaith Leader’s Disability Training – Facilitator’s Guide
NGOs’ Disability Training – Facilitator’s Guide
Stakeholder Disability Meeting – Facilitator’s Guide
A Pastor Disability Ministry Guide
Disability Training Guide
Child Case Management App – User Journey
Child Case Management App – Sample Content Screens
Child Case Management App – Training Videos with Subtitles: