Child Case Management Mobile App

Kupenda and Kuhenza’s Child Case Management mobile application supports community-based counseling, care and referrals for children with disabilities and their families in low-income countries.

Features

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Child Progress Tracking

The app’s tools enable field teams to track the physical, social, academic and emotional progress of vulnerable children based on the Washington Group measurements and Measure Evaluation’s Child Status Index, which we have tailored for children with disabilities.

Community Leader Child Case Management

The app also contains 12 tailored counseling guides that our field staff and trained local leader child advocates use to support children with disabilities and their caregivers and refer them for care.

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Prioritization & Emergency Care

The app’s prioritization and emergency care feature also enables app users to provide immediate support to children who are showing signs of malnutrition, illness, abuse or life-threatening medical needs.

Two photos of Hellen. Left: pictured laying down. Right: pictured in a blue dress

Hellen’s Story

Hellen’s birth was difficult and was soon followed by high fevers and seizures. As she grew, her parents noticed that she was unable to speak, move easily, or sit on her own. Her mother took her to nine different traditional healers who believed that Hellen had been bewitched. Despite their treatments, Hellen did not improve.

Over time, Hellen’s family blamed her mother for causing her disability and refused to accept or support Hellen. Since the family lacked resources, Hellen was often denied meals and became emaciated. At his lowest point, Hellen’s father even expressed a wish for Hellen to die.

When Pastor Ndundi, a Kuhenza/Kupenda-trained disability advocate and Kuhenza/Kupenda staff learned of Hellen’s situation, they visited the family to provide counseling and nutritional support. Through their efforts, the family had a better understanding of Hellen’s disability and how to offer support.

Hellen’s mother stated,

“I learned that my child’s disability was not a result of witchcraft but … prolonged labor and my child’s sickness after giving birth…This knowledge has been an eye-opener to me and my family.”

Today, Kuhenza/Kupenda’s Child Case Management Mobile App allows local leaders and staff to continue to track her needs and provide follow-up support.

Her father stated,

“It is through Kuhenza/Kupenda that my child has been able to access medical interventions. Her nutritional needs are being met and the psychological wellbeing of the family has been taken care of. Thank you so much Kuhenza/Kupenda for giving us hope at a time when we were so desperate!

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Impact

Last year, this app tripled the number of children our staff and leaders were able to support with counseling and care for abuse, therapy, education, stigma, and medical care needs.

To learn more about this project, check out the short video created by our Boston University partners and a video presentation by our Development Director.

Mhealth Solutions for Mobilizing Staff and Volunteers to Support Children with Disabilities
How Kupenda’s Child Case Management Mobile Application is Saving Children’s Lives

Work With Us

Fill out the form below to learn more about our app tools, results, and training videos.
To learn more about partnering with Kupenda and Kuhenza to use the Child Case Management app or our other disability advocacy tools, contact us at [email protected].

Complete the Form Below to Access our Open-Source Library of App Resources

COPYRIGHT LICENSE AGREEMENT

This Copyright License Agreement (the “Agreement”) is effective as of [date] (the “Effective Date”) by and between Kupenda for the Children and Kuhenza for the Children (“Licensor”) and [partner name] (“Licensee”) (each, a “Party” and collectively the, “Parties”).

WHEREAS the Parties have a mutual interest in the field of disability justice and advocacy who share materials, information, connections, and other resources in the furtherance of this mutual interest;

WHEREAS Licensor owns or has a right to license certain materials, including, but not limited to, documents, publications, videos, and electronic resources, related to its work in disability advocacy, including those materials described in Exhibit A (the “Licensed Materials”);

WHEREAS Licensee plans to use the Licensed Materials to update Licensee’s materials related to disability justice and advocacy (the “[partner name] Updates”); and

WHEREAS Licensor desires to grant Licensee a license to the Licensed Materials for use in conducting the [partner name] Updates.

NOW, THEREFORE, for good and valuable consideration, the receipt and sufficiency of which are hereby acknowledged, the parties agree as follows:

  • 1. Grant of license. Beginning on the Effective Date for a period of five years (the “License Period”), Licensor hereby grants Licensee a non-exclusive, royalty-free, non-transferable, non-sublicenseable license to make the following uses of the Licensed Materials by Licensee’s employees (collectively, “Authorized Users”):
    • a. To store the Licensed Materials within Licensee’s electronic network solely for purposes in connection the [partner name] Updates.
    • b. To distribute, by means of Licensee’s electronic network, the Licensed Materials to Authorized Users solely for the purpose of preparing the [partner name] Updates.
    • c. To permit Authorized Users to print out physical copies of the Licensed Materials so long as Authorized Users only print such copies for use in connection with the [partner name] Updates.
    • d. To incorporate Licensed Materials into the [partner name] Updates, provided the incorporation of Licensed Material into the [partner name] Updates comply with the Limitations of Section 2, below.
  • 2. Limitations. The license granted in Section 1 above is expressly made subject to and limited by the following restrictions and requirements:
    • a. Licensee is only permitted to make limited technical modifications as are necessary to the Licensed Materials so that the Licensed Materials may be distributed via the Licensee’s electronic network and by print copies.
    • b. Licensee shall attribute the Licensor’s contribution to the [partner name] Updates in a manner reasonably acceptable to Licensor and shall also include a credit line with the logos of Licensor and Licensor’s affiliate, Kuhenza for the Children, in a prominent location using prominent formatting in all materials, whether electronic or printed, incorporating any Licensed Materials as is reasonably acceptable to Licensor.
    • c. Licensee may not remove any copyright or other proprietary notices on or in any copies of the Licensed Materials nor modify, adapt or translate the Licensed Materials.
    • d. Licensee shall cooperate with Licensee in conducting and completing surveys with respect to the usage activities of the Licensed Materials. Timely completion of such surveys is a material term of this Agreement and survey frequency shall be determined in Licensor’s reasonable discretion.
    • e. Licensee shall implement reasonable data security measures, which are no less rigorous than generally accepted industry standards, to protect the Licensed Materials from unauthorized use or access and shall promptly inform Licensor of any actual or suspected unauthorized use or access of the Licensed Materials.
  • 3. Representations; Disclaimer. Each Party herby represents and warrants that it is authorized to enter the Agreement, is an educational institution and is able perform its obligations hereunder. UNLESS OTHERWISE MUTUALLY AGREED TO BY THE PARTIES HERETO AND TO THE FULLEST EXTENT PERMMITED BY LAW, LICENSOR OFFERS THE LICENSED MATERIALS AS-IS AND MAKES NO REPRESENTATIONS OR WARRANTIES OF ANY KIND CONCERNING THE WORK, EXPRESS, IMPLIED, STATUTORY OR OTHERWISE, INCLUDING, WITHOUT LIMITATION, WARRANTIES OF TITLE, MERCHANTABILITY, FITNESS FOR A PARTICULAR PURPOSE, NONFINFRINGEMENT OR THE ABSENCE OF LATENT OR OTHER DEFECTS, ACCURACY OR THE PRESENCE OR ABSENCE OF ERRORS WHETHER OR NOT DISCOVERABLE.
  • 4. Term; Termination. This Agreement shall be effective as of the Effective Date and terminate at the end of the License Period. Licensor may terminate this Agreement upon written notice to Licensee if Licensee breaches its obligations under this Agreement and such breach is not cured within thirty (30) days after Licensee is notified in writing of the nature of the breach. Upon the effective date of the termination, Licensee shall immediately remove all copies of the Licensed Materials from Licensee’s electronic network.
  • 5. Governing Law. The laws of the state of New Hampshire, without giving effect to its principles of conflicts of law, govern all adversarial proceedings brought by a Party against the other Party arising out of this Agreement or arising out of misuse of the Licensed Materials.
  • 6. Limitation of Liability. EXCEPT TO THE EXTENT REQUIRED BY APPLICABLE LAW, IN NO EVENT WILL LICENSOR BE LIABILE ON ANY LEGAL THEORY FOR ANY SPECIAL, INCIDENTAL, CONSEQUENTIAL, PUNITIVE OR EXEMPLARY DAMAGES ARISING OUT OF THIS AGREEMENT OR THE USE OF THE LICENSED MATERIALS. EVEN IF LICENSOR HAS BEEN ADVISED O FTHE POSSIBILITY OF SUCH DAMAGES.
  • 7. Miscellaneous. This Agreement contains the entire agreement between the Parties pertaining to the subject matter hereof, and there are no agreements or representations (either written or oral, expressed or implied) between the Parties except as set forth in this Agreement. The terms and conditions of this Agreement are confidential and each Party shall use reasonable efforts to maintain the confidentiality of the terms and conditions of this Agreement. Licensee may not transfer or sublicense any of its rights under this Agreement.

IN WITNESS WHEREOF the Parties have executed this Agreement on the date set forth below.

Kupenda for the Children

Name: Cynthia Bauer
Title: Executive Director

Date: [date]

[signature1]

Kuhenza for the Children

Name: Leonard Mbonani
Title: Kenya Director

Date: [date]

[signature2]

[partner name]

Name: [partner name]
Title: [partner title]

Date: [date]

[signature]

Exhibit A

Licensed Materials

Disability Law Guides

  • Disability Law Guide – Kenya Example
  • National and Local Disability Law Summary – Kenya Example – English
  • National and Local Disability Law Summary – Kenya Example – Swahili

 

Other Disability Advocate Resources

  • Community Disability Advocacy Program Implementation Guidelines – 6 Steps
  • Service Referral List for Children with Disabilities (Kilifi, Kenya example)
  • Disability Advocate Home Visit Guide
  • Disability Advocate Commitment
  • Disability Inclusion Accessibility Checklist for Facilities, Communication, and Resources

 

Disability Training Workshop Pre- and Post-Assessments

  • For Pastors
  • For Traditional Healers
  • For Government Officials
  • For Parents and Caregivers of Children with Disabilities

 

Disability Advocate Weekly Activity Reports

  • For Pastors
  • For Traditional Healers
  • For Government Officials
  • For Parents and Caregivers of Children with Disabilities

 

Interview Guides

  • Community Disability Advocate Interview Guide

Coronavirus Guidance

  • Coronavirus Guidance for Families Impacted by Disability – English
  • Coronavirus Guidance for Families Impacted by Disability – Swahili

 

Disability Guidebook

 

Child Case Management mobile app

 

“Kupenda” documentary

 

Pastor Training Materials

  • Pastor Disability Training – Participant Recruitment Guide
  • Pastor Disability Training – Facilitator’s Guide

Traditional Healer Training Materials

  • Traditional Healer Disability Training – Participant Recruitment Guide
  • Traditional Healer Disability Training – Facilitator’s Guide

Government Leader Training Materials

  • Government Leader Disability Training – Participant Recruitment Guide
  • Government Leader Disability Training – Facilitator’s Guide

Parents and Caregivers Training Materials

  • Parents and Caregivers Disability Training – Participant Recruitment Guide
  • Parents and Caregivers Disability Training – Facilitator’s Guide

Muslim Leaders’ Training Materials

  • Muslim Leaders Disability Training – Participant Recruitment Guide
  • Muslim Leaders Disability Training – Facilitator’s Guide

Post-Disability Training Support Strategies Guide

 

Disability Advocate Training of Trainers

Parent Support Group Guide

Abuse Prevention Guides (for children and caregivers)

 

Interfaith Leader’s Disability Training – Facilitator’s Guide

 

NGOs’ Disability Training – Facilitator’s Guide

 

Stakeholder Disability Meeting – Facilitator’s Guide

 

A Pastor Disability Ministry Guide

 

Disability Training Guide

Child Case Management App Resources

The Child Case Management Mobile Application can be customized for the needs of different organizations and populations. To learn how or access any of the following materials, please email us at [email protected]

  • Child Case Management App Framework
  • Child Case Management App Monitoring, Evaluation & Learning Framework
  • Child Case Management App User Guide